Breakthrough Summit Report: Turning Takeaways into Action MdDS Foundation 12:07 pm Raising Awareness, Our Impact, Advocacy, Patient Registry, I Am Empowered 11.12.2025 Breakthrough Summit Report: Turning Takeaways into Action Conference Success ✅ We met with top IAMRARE® Patient Registry Leaders to talk strategy and open up new opportunities. More than attending an annual meeting, making in-person connections is how we amplify the MdDS community’s voice and create lasting positive change. Want to know what this means for you? Read the full post now! Read More
Clinical Research Training Scholarship MdDS Foundation 12:00 am Announcements, Faces of MdDS, Research 6.1.2025 Clinical Research Training Scholarship In collaboration with the American Academy of Neurology (AAN), the MdDS Foundation and American Brain Foundation (ABF) are offering a Clinical Research Training Scholarship focused on MdDS. Read More
Part 2: The 2024 Breakthrough Summit, Tote & PAOs MdDS Foundation 10:06 am Raising Awareness, Advocacy, Research 11.22.2024 Part 2: The 2024 Breakthrough Summit, Tote & PAOs Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes. Read More
Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Raising Awareness, Advocacy, Faces of MdDS, Research 11.16.2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
June 2024 Newsletter MdDS Foundation 11:59 am Our Impact, Raising Awareness, Announcements, Faces of MdDS, Research, News 7.8.2024 June 2024 Newsletter Exciting news you can use! This edition is filled with important information that you definitely want to read. Read More
Scholarship Announcement & Commitment to Cures MdDS Foundation 10:20 am Raising Awareness, Our Impact, Announcements, Research 5.30.2023 Scholarship Announcement & Commitment to Cures Our commitment to life-changing research continues with a scholarship announcement. Read More
The biological basis of MdDS is real. Studies have given us an understanding of the neural basis of MdDS, and guided the development of different forms of non-invasive brain stimulation therapies. – Yoon-Hee Cha, MD MdDS Foundation 11:00 am PROspective, Research 1.31.2018 The biological basis of MdDS is real. Studies have given us an understanding of the neural basis of MdDS, and guided the development of different forms of non-invasive brain stimulation therapies. – Yoon-Hee Cha, MD Effective research requires teamwork.Research into the biological basis of MdDS has advanced rapidly in the last 10 years through the collaborative efforts of scientists, engineers, clinicians, funding organizations, and not least of all, people affected by MdDS. It would be difficult to find any other disorder in the same time period that has been investigated […] Read More
Mount Sinai School of Medicine, VOR Readaptation MdDS Foundation 6:03 pm Research 11.1.2014 Mount Sinai School of Medicine, VOR Readaptation The following update is provided by Mingjia Dai, PhD., Mount Sinai School of Medicine.Oct. 30, 2014 — Since the publication on the study of the treatment for patients with MdDS, we have further explored VOR Readaptation for patients with classic MdDS (17 patients), spontaneous MdDS (no clear cause, 9 patients) and “MdDS” from head trauma (2 patients). The […] Read More
