Part 2: The 2024 Breakthrough Summit, Tote & PAOs
Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes.
Tag: advocacy
Alone we are Rare. Together we are Strong.
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.
June 2024 Newsletter
Exciting news you can use! This edition is filled with important information that you definitely want to read.
“Navigating Life with MdDS: My Journey to Recovery and Hope” by Yoreim Virella
“This journey has given me a new perspective on life,… You are stronger than you think, and your story can inspire and help others.” Yoseim
“Finally found a cure for me” by Laura
“I suffered with this many times but I finally found someone who listened and something that worked for me and got my life back.” Laura’s story on the blog today. Read & Share!
How Are You Celebrating Being Rare?
The MdDS Foundation and our partner in advocacy, the National Organization for Rare Disorders (NORD), is celebrating Rare Disease Day on February 28, 2013. Last year we worked to create advocacy on the state level, with many Governors’ Proclamations of Rare Disease Day. This year NORD suggests some new ideas on how you can celebrate being rare. […]