Hope Twice Found: My 10-Year Battle Back from the MdDS Monster a Contributing Writer 12:08 pm Faces of MdDS 12.23.2025 Hope Twice Found: My 10-Year Battle Back from the MdDS Monster “You just have to learn to live with it.” We’ve all heard those words, but my journey proves otherwise. After 10 years, a devastating relapse, and a battle back from a stroke, I can finally say: the MdDS monster is gone. Read my full story of hope, the danger of Propofol, and how I found remission twice. 🌊⚓️ Read More
Cayman Charter Boat—>Motion Sickness Forever MdDS Foundation 4:56 pm Faces of MdDS 9.2.2025 Cayman Charter Boat—>Motion Sickness Forever While struggling to find a doctor, Lynn stumbled upon the MdDS website. It gave her hope, relief, and answers. Today, she has a better understanding of her symptoms and her triggers. Telling her story 9 years after the boat charter that left her with “persistent motion sickness,” she wants you to know that you are not alone. And that there is hope! Read More
Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT MdDS Foundation 3:49 pm Our Impact, PROspective 1.15.2025 Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT The MdDS Foundation is proud to have a distinguished group of volunteers dedicated to supporting the MdDS Patient Registry. In the coming weeks, we’ll be highlighting other members and the important work they do. Read More
Part 2: The 2024 Breakthrough Summit, Tote & PAOs MdDS Foundation 10:06 am Advocacy, Raising Awareness, Research 11.22.2024 Part 2: The 2024 Breakthrough Summit, Tote & PAOs Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes. Read More
Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Raising Awareness, Advocacy, Faces of MdDS, Research 11.16.2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
June 2024 Newsletter MdDS Foundation 11:59 am Our Impact, Raising Awareness, Announcements, Faces of MdDS, Research, News 7.8.2024 June 2024 Newsletter Exciting news you can use! This edition is filled with important information that you definitely want to read. Read More
“Navigating Life with MdDS: My Journey to Recovery and Hope” by Yoreim Virella a Contributing Writer 11:00 am Faces of MdDS 6.29.2024 “Navigating Life with MdDS: My Journey to Recovery and Hope” by Yoreim Virella “This journey has given me a new perspective on life,… You are stronger than you think, and your story can inspire and help others.” Yoseim Read More
“Finally found a cure for me” by Laura a Contributing Writer 11:44 am Faces of MdDS 6.17.2024 “Finally found a cure for me” by Laura “I suffered with this many times but I finally found someone who listened and something that worked for me and got my life back.” Laura’s story on the blog today. Read & Share! Read More
