Wear That You Care MdDS Foundation 3:03 pm Raising Awareness 07/27/2012 Wear That You Care Cause bracelets have been available for breast cancer and heart disease but there has never been a unifying symbol, color or bracelet that represents the rare and genetic disease community. That’s why the Global Genes Project started the 7,000 Bracelets for Hope™ campaign.They collect unique bracelets made by jewelry designers, artists, crafters, church groups, girl […] Read More
Gillian Archer Raises Awareness on BBC Radio MdDS Foundation 12:03 pm Raising Awareness 07/06/2012 Gillian Archer Raises Awareness on BBC Radio Wolverhampton, West Midlands, UK: Gill Archer tells BBC Radio her story of being travel sick for years and how she fought for a diagnosis. Read More
Today is Social Media Day MdDS Foundation 12:01 am Uncategorized 06/30/2012 Today is Social Media Day To celebrate the third annual Social Media Day, I’d like to share something with you. I am a Facebook clutz.At my day job, I am the purported “Social Media Guru” and yet this one took me a while to figure out. The Foundation manages two Facebook pages.First there is a public Facebook page that anyone […] Read More
JAM: Life Vest Awareness Mailer MdDS Foundation 4:41 pm Raising Awareness, art 06/04/2012 JAM: Life Vest Awareness Mailer This brochure concept was designed by a young lady named Keely. It’s an orange life vest and when folded for mailing, the sticker to close it would be the buckle of the vest. Pretty clever, don’t you think?It is such a great piece because not only does it show that someone gets it but also […] Read More
Finally! We Rock T-Shirts MdDS Foundation 9:50 am Raising Awareness 05/18/2012 Finally! We Rock T-Shirts For a number of years, people have been asking for MdDS t-shirts or mugs. Now you can finally get these items at our new Friendraiser Store! With June Awareness Month (JAM) right around the corner, now is a great time to order. There are two mug designs and two t-shirt designs, including a reprint of […] Read More
MdDS in the News: South African papers tell the stories of 3 MdDSers MdDS Foundation 1:20 pm Raising Awareness 04/16/2012 MdDS in the News: South African papers tell the stories of 3 MdDSers ENT specialist Dr. Duane Mol explains MdDS to heritage newspaper, The Star.Through the stories of three MdDSers this well-written article, published in South African newspapers The Star and The Pretoria News, tells how life-altering MdDS truly is. The Strange and Rare Disorder that Ended My Career and Quality of Life: Marlene van Rensburg of Waverly, Pretoria […] Read More
I met another 1-in-10 today! MdDS Foundation 2:50 pm Faces of MdDS 03/07/2012 I met another 1-in-10 today! February 29, 2012 – Sitting in a business meeting, I casually mentioned that it was Rare Disease Day and a woman raised her hand proudly and said, “I have a rare disease!” I shouldn’t have been surprised, but I was.Having an orphan disease like MdDS, we so often feel isolated, and it seems like there’s […] Read More
MdDS in the News: Mother-of-three suffers airsickness for life after turbulent flight to Florida SIX YEARS ago MdDS Foundation 1:22 pm Raising Awareness 02/24/2012 MdDS in the News: Mother-of-three suffers airsickness for life after turbulent flight to Florida SIX YEARS ago “A nurse has been left feeling permanently airsick – ever since she stepped off a turbulent flight six years ago.Gill Archer, from Wolverhampton, West Midlands, was left struggling to balance, feeling queasy and permanently dizzy when she stepped off the long-haul flight to Florida in 2006.The mother-of-three assumed the feeling would pass – but was […] Read More
