Picture Perfect

I believe that pictures are the most beautiful things that exist. You are capturing a moment in time that lasts forever. Everything stops for that moment and is still. Little did I know that this picture would be my last ‘still’ moment. I wanted to capture the moment of the wanderlust girl I am, well […]

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Be Ready to Raise MdDS Awareness on Rare Disease Day

To help you, we set up a store on Zazzle. From tees to mugs, there are many items to raise awareness of MdDS – and you can customize them all! The purpose of the store is to raise awareness and help people who are battling Mal de Débarquement Syndrome, and those who have no idea of their […]

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This GivingTuesday at the MdDS Foundation

ANNOUNCEMENT: 10.27.2017 — The Gates Foundation is matching donations made to US nonprofits using Facebook on Giving Tuesday. Facebook is also waiving fees on donations that day, so please schedule a reminder for Giving Tuesday, 11/28/20017, on your calendar to donate through our fundraiser page on Facebook. This GivingTuesday, we are focused on our goal […]

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Welcome, friends and supporters. The time is here!

A Russian river cruise. An anniversary trip to Paris. Lifelong sailor. Spontaneously. While each of our journeys began differently, we are bound together by the need for diagnosis, treatment and support, and the cure for MdDS.

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Perfect for JAM. Perfect for You.

Newly available, this bangle bracelet is perfect for raising awareness during June Awareness Month (JAM) or any time. The charm says, “Stop the Rock” and features an awareness ribbon in silver and blue, the colors for neurological diseases and disorders like MdDS. Feel free to change the charm’s blue background to your favorite color, and […]

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The Foundation Educates Doctors

The Foundation uses two simple yet effective tools to advocate for you, on your behalf. Upon your request Board President, Marilyn Josselyn, herself will mail out a letter to your doctor that introduces them to MdDS. This one page letter briefly describes MdDS, possible etiology and current research efforts. Click to view a sample: Letter for […]

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