Alone we are Rare. Together we are Strong.
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.
Tag: awareness
June 2024 Newsletter
Exciting news you can use! This edition is filled with important information that you definitely want to read.
“Navigating Life with MdDS: My Journey to Recovery and Hope” by Yoreim Virella
“This journey has given me a new perspective on life,… You are stronger than you think, and your story can inspire and help others.” Yoseim
I’m not Dawn yet!
For some, MdDS is a cloak of darkness that settles over them. But Dawn McGhee is helping people who struggle like herself, to find light in the darkness.
Rocking Candles, Giving Back since 2018
For eight years, Kate has been explaining to others what daily life is like for MdDS sufferers. An MdDS warrior herself, she has been creating custom candles and giving back through donations to support research so we can all “get off that boat.”
Young Woman Depicts Her Experience with MdDS Through Her Art
Depicting her experience with MdDS through art, Christina shared Infinite Waves with us. The strong symbolism in this painting allows those living with MdDS to find commonality and validation for their own feelings.
Meet Jodi L., MdDS Awareness Star
I have had a crazy year but I want to share some things I have been doing to raise awareness about MdDS. ~Jodi L., #MdDSwarrior
Rare Diseases Are Not Rare!
MdDS warrior submissions to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition.