Please Stand By… an Important Announcement is Coming.

This is a test of the MdDS broadcasting system. Rare Diseases Are Not Rare! 1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! Here are a few submissions by MdDS warriors to the National Center for Advancing Translational Sciences (NCATS)​ “Rare Diseases Are Not […]

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Hello, This Is Me

1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me, posted on the MdDS Foundation blog today. Hello, could someone out there please fix me? I never asked for […]

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Provider Outreach: New Committee Advocates for MdDS Patients

The MdDS Foundation is pleased to introduce you to our Provider Outreach Committee, co-chaired by Marilyn Williams and Suzanne Marsh. The committee works to raise awareness of MdDS among health care providers and to provide you with the best Professional Directory possible. Marilyn Williams is an MdDS warrior. She diligently researches and updates information on […]

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Picture Perfect

I believe that pictures are the most beautiful things that exist. You are capturing a moment in time that lasts forever. Everything stops for that moment and is still. Little did I know that this picture would be my last ‘still’ moment. I wanted to capture the moment of the wanderlust girl I am, well […]

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Be Ready to Raise MdDS Awareness on Rare Disease Day

To help you, we set up a store on Zazzle. From tees to mugs, there are many items to raise awareness of MdDS – and you can customize them all! The purpose of the store is to raise awareness and help people who are battling Mal de Débarquement Syndrome, and those who have no idea of their […]

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This GivingTuesday at the MdDS Foundation

ANNOUNCEMENT: 10.27.2017 — The Gates Foundation is matching donations made to US nonprofits using Facebook on Giving Tuesday. Facebook is also waiving fees on donations that day, so please schedule a reminder for Giving Tuesday, 11/28/20017, on your calendar to donate through our fundraiser page on Facebook. This GivingTuesday, we are focused on our goal […]

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