Meet Jodi L., MdDS Awareness Star
I have had a crazy year but I want to share some things I have been doing to raise awareness about MdDS. ~Jodi L., #MdDSwarrior
Tag: awareness
Rare Diseases Are Not Rare!
MdDS warrior submissions to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition.
Hello, This Is Me
1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me.
Provider Outreach: New Committee Advocates for MdDS Patients
We are pleased to introduce you to our Provider Outreach Committee, which works to raise awareness of MdDS among health care providers and to provide you with the best Professional Directory possible.
Picture Perfect
After a day of flying and going up 107 stories to a restaurant in the sky, I felt a panic I had never felt before. It felt like I was walking on a bouncing floor.
Be Ready to Raise MdDS Awareness on Rare Disease Day
To help you, we set up a store on Zazzle. From tees to mugs, there are many items to raise awareness of MdDS – and you can customize them all! The purpose of the store is to raise awareness and help people who are battling Mal de Débarquement Syndrome, and those who have no idea of their […]