Mickie’s Journey from Mal de Debarquement Syndrome to Disembarkment MdDS Foundation 9:31 pm Faces of MdDS 04/03/2015 Mickie’s Journey from Mal de Debarquement Syndrome to Disembarkment WARNING: this is a long post. If you have MdDS and are bothered by scrolling, we recommend printing to read offline. To print Mickie’s story, press Command+P on a Mac or Control+P on a PC. Then don’t forget to share it!Rocking and Swaying After a CruiseMy name is Mickie Agee and I live in Nashville, Tennessee. For […] Read More
Robert’s Story: Self-Diagnosed 36 yr-old Atlantan MdDS Foundation 3:00 pm Faces of MdDS 02/16/2015 Robert’s Story: Self-Diagnosed 36 yr-old Atlantan My name is Robert Lupo, and I live in Decatur, Georgia. I am a 36 year old male who has been experiencing Mal de Debarquement for a little over two years. I left a concert on January 1st 2013 and have been experiencing this syndrome ever since. Throughout the first couple months of experiencing it […] Read More
In Memory & Honor Donations MdDS Foundation 3:27 pm Acknowledgment 01/22/2015 In Memory & Honor Donations The Foundation would like to acknowledge the following donations made by friends and loved ones. Thank you for your care and support. Honor Donations Keith Knowles – In honor of Karen Galinkin in memory of Zac Marilyn Josselyn – In honor of Karen Galinkin in memory of Zac HollyB – In honor of Karen Galinkin in memory […] Read More
$1,000 Matching Challenge: Deadline Extended to Jan 27 MdDS Foundation 8:00 am Announcements 01/09/2015 $1,000 Matching Challenge: Deadline Extended to Jan 27 Greet the new year with a contribution to help us meet this first challenge of 2015. Now through January 20 27, every donation to the Foundation will be matched, dollar-for-dollar up to $1,000! Donations fund vital research into the cause of and a cure for Mal de Débarquement Syndrome. The more research conducted, the more current medical information […] Read More
Looking Back at 2014, Ahead to 2015, and a Call for Volunteers! MdDS Foundation 1:50 pm Raising Awareness 12/23/2014 Looking Back at 2014, Ahead to 2015, and a Call for Volunteers! The MdDS Foundation sincerely thanks all the supporters and volunteers that helped make this a successful year. Without you, these accomplishments would not be possible. Please take a few minutes to read these highlights. Top Media Moments During the Rare Disease Day TweetChat with NORD and ABC, 3,212 tweets were sent with a potential exposure of 28.2 million. Joy Sheerer appeared with Dr. […] Read More
Finally Available! Awareness Bracelets for MdDS MdDS Foundation 6:34 pm Raising Awareness 12/01/2014 Finally Available! Awareness Bracelets for MdDS With the help of some great volunteers, there is now an MdDS awareness bracelet! It’s been an interesting learning experience, but the design, production and US shipping hurdles have all been figured out, and we are now ready to roll them out to the public!*To receive a Stop the Rock! bracelet, simply make a donation of $20 or […] Read More
Mount Sinai School of Medicine, VOR Readaptation MdDS Foundation 6:03 pm Research 11/01/2014 Mount Sinai School of Medicine, VOR Readaptation The following update is provided by Mingjia Dai, PhD., Mount Sinai School of Medicine.Oct. 30, 2014 — Since the publication on the study of the treatment for patients with MdDS, we have further explored VOR Readaptation for patients with classic MdDS (17 patients), spontaneous MdDS (no clear cause, 9 patients) and “MdDS” from head trauma (2 patients). The […] Read More
In Memory & Honor Donations MdDS Foundation 11:37 am Acknowledgment 10/05/2014 In Memory & Honor Donations The Foundation would like to acknowledge the following donations made by friends and loved ones. We thank you for your care and support. Honor Donations Elaine & Edward Schlissel – In honor of my fellow southeast rockers Antoinette Salcedo – In honor of Charleen Anomanni Louis & Ethel Ivens – In honor of Marilyn Josselyn Irene Garbo – In honor of […] Read More
