Volunteer Spotlight: Your friendly gatekeeper, Brandy MdDS Foundation 1:34 pm Raising Awareness 06/21/2021 Volunteer Spotlight: Your friendly gatekeeper, Brandy Volunteering anywhere is a great use of time for anyone. If you can finish volunteering somewhere and know that you’ve impacted the life of anyone, personally it makes me feel really good. ~Brandy Read More
MdDS highlighted on popular French tv show “Ça commence aujourd’hui” MdDS Foundation 8:42 pm Raising Awareness, Faces of MdDS 03/03/2021 MdDS highlighted on popular French tv show “Ça commence aujourd’hui” In this episode of Ça commence aujourd’hui, French journalist Faustine Bollaert interviews a young woman who’s been dealing with Disembarkment Syndrome since June. Watch the clip in French or read the transcript in English here. Read More
Does MdDS have an ICD code? MdDS Foundation 5:18 am Our Impact 12/05/2020 Does MdDS have an ICD code? This International Volunteer Day, we’d like to thank volunteers for our ICD code, R42. Learn more about the International Classification of MdDS and its significance to the medical world in today’s blog post. Read More
Meet Jodi L., MdDS Awareness Star MdDS Foundation 5:22 pm Raising Awareness, Faces of MdDS 10/15/2019 Meet Jodi L., MdDS Awareness Star I have had a crazy year but I want to share some things I have been doing to raise awareness about MdDS. ~Jodi L., #MdDSwarrior Read More
Shine a Light on MdDS MdDS Foundation 11:00 am Raising Awareness, Acknowledgment 05/21/2019 Shine a Light on MdDS Join us and “Shine a Light on MdDS.” Whether using social media, sending out educational brochures, or wearing MdDS apparel while you’re out-and-about, your help is vital to raising awareness of MdDS. Read More
Make the Matches 🙌 Announcing Two Matching Challenges! MdDS Foundation 4:14 pm Announcements 11/20/2018 Make the Matches 🙌 Announcing Two Matching Challenges! The 2018 Giving Season launches with two matching challenges. Read More
Rare Diseases Are Not Rare! MdDS Foundation 6:38 pm Raising Awareness, art 11/13/2018 Rare Diseases Are Not Rare! MdDS warrior submissions to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition. Read More
Hello, This Is Me MdDS Foundation 2:45 pm Raising Awareness, art 11/12/2018 Hello, This Is Me 1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me. Read More
