Rare Diseases Are Not Rare!
MdDS warrior submissions to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition.
Author: MdDS Foundation
Hello, This Is Me
1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me.
The biological basis of MdDS is real. Studies have given us an understanding of the neural basis of MdDS, and guided the development of different forms of non-invasive brain stimulation therapies. – Yoon-Hee Cha, MD
Effective research requires teamwork.Research into the biological basis of MdDS has advanced rapidly in the last 10 years through the collaborative efforts of scientists, engineers, clinicians, funding organizations, and not least of all, people affected by MdDS. It would be difficult to find any other disorder in the same time period that has been investigated […]
How’d we do this Giving Tuesday?
Thank you for having our backs and making a difference this year. GivingTuesday 2017 was the MdDS Foundation’s most successful one-day fundraiser ever with help from Facebook and the Gates Foundation. Due to the tremendous engagement and enthusiasm by the nonprofit community, the $2 million match limit was reached early and a total of $45 […]
#MakeADifferenceDay, Honor Donations
It’s Make A Difference Day, the perfect day to honor someone you love with a Tribute gift. Tribute gifts are a meaningful way to honor a special person or life event and also support those with MdDS. We thank the following for their gifts in honor of someone special.Honor DonationsWelcome to this bright new world, […]
This GivingTuesday at the MdDS Foundation
ANNOUNCEMENT: 10.27.2017 — The Gates Foundation is matching donations made to US nonprofits using Facebook on Giving Tuesday. Facebook is also waiving fees on donations that day, so please schedule a reminder for Giving Tuesday, 11/28/20017, on your calendar to donate through our fundraiser page on Facebook.This GivingTuesday, we are focused on our goal to […]
Meet Board President, Marilyn Josselyn
As a result of the challenges in learning about and adjusting to life with MdDS, Roger and I began a crusade to increase awareness about the disorder.
🌟 Donor All-Stars
Along with several annual donors, since 2009 a small group of people have unknowingly become a team of rare champions. These friends and family members have continually shown their support of the MdDS community and their commitment to our mission and goals. They’ve proven that small donations over time are just as impactful as any […]
