Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Raising Awareness, Advocacy, Faces of MdDS, Research 11.16.2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
June 2024 Newsletter MdDS Foundation 11:59 am Raising Awareness, Our Impact, Announcements, Faces of MdDS, Research, News 7.8.2024 June 2024 Newsletter Exciting news you can use! This edition is filled with important information that you definitely want to read. Read More
“Navigating Life with MdDS: My Journey to Recovery and Hope” by Yoreim Virella a Contributing Writer 11:00 am Faces of MdDS 6.29.2024 “Navigating Life with MdDS: My Journey to Recovery and Hope” by Yoreim Virella “This journey has given me a new perspective on life,… You are stronger than you think, and your story can inspire and help others.” Yoseim Read More
I’m not Dawn yet! a Contributing Writer 12:22 pm Raising Awareness, Faces of MdDS 6.22.2024 I’m not Dawn yet! For some, MdDS is a cloak of darkness that settles over them. But Dawn McGhee is helping people who struggle like herself, to find light in the darkness. Read More
Rocking Candles, Giving Back since 2018 MdDS Foundation 12:27 pm Raising Awareness, art, Faces of MdDS 6.19.2024 Rocking Candles, Giving Back since 2018 For eight years, Kate has been explaining to others what daily life is like for MdDS sufferers. An MdDS warrior herself, she has been creating custom candles and giving back through donations to support research so we can all “get off that boat.” Read More
Young Woman Depicts Her Experience with MdDS Through Her Art MdDS Foundation 7:06 pm Raising Awareness, art, Faces of MdDS 2.20.2023 Young Woman Depicts Her Experience with MdDS Through Her Art Depicting her experience with MdDS through art, Christina shared Infinite Waves with us. The strong symbolism in this painting allows those living with MdDS to find commonality and validation for their own feelings. Read More
Meet Jodi L., MdDS Awareness Star MdDS Foundation 5:22 pm Raising Awareness, Faces of MdDS 10.15.2019 Meet Jodi L., MdDS Awareness Star I have had a crazy year but I want to share some things I have been doing to raise awareness about MdDS. ~Jodi L., #MdDSwarrior Read More
Rare Diseases Are Not Rare! MdDS Foundation 6:38 pm Raising Awareness, art 11.13.2018 Rare Diseases Are Not Rare! MdDS warrior submissions to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition. Read More
