Picture Perfect
After a day of flying and going up 107 stories to a restaurant in the sky, I felt a panic I had never felt before. It felt like I was walking on a bouncing floor.
Tag: awareness
Be Ready to Raise MdDS Awareness on Rare Disease Day
To help you, we set up a store on Zazzle. From tees to mugs, there are many items to raise awareness of MdDS – and you can customize them all! The purpose of the store is to raise awareness and help people who are battling Mal de Débarquement Syndrome, and those who have no idea of their […]
This GivingTuesday at the MdDS Foundation
ANNOUNCEMENT: 10.27.2017 — The Gates Foundation is matching donations made to US nonprofits using Facebook on Giving Tuesday. Facebook is also waiving fees on donations that day, so please schedule a reminder for Giving Tuesday, 11/28/20017, on your calendar to donate through our fundraiser page on Facebook. This GivingTuesday, we are focused on our goal […]
Welcome, friends and supporters. The time is here!
A Russian river cruise. An anniversary trip to Paris. Lifelong sailor. Spontaneously. While each of our journeys began differently, we are bound together by the need for diagnosis, treatment and support, and the cure for MdDS.
Perfect for JAM. Perfect for You.
Newly available, this bangle bracelet is perfect for raising awareness during June Awareness Month (JAM) or any time. The charm says, “Stop the Rock” and features an awareness ribbon in silver and blue, the colors for neurological diseases and disorders like MdDS. Feel free to change the charm’s blue background to your favorite color, and […]
The Foundation Educates Doctors
The Foundation uses two simple yet effective tools to advocate for you, on your behalf. Upon your request Board President, Marilyn Josselyn, herself will mail out a letter to your doctor that introduces them to MdDS. This one page letter briefly describes MdDS, possible etiology and current research efforts. Click to view a sample: Letter for […]
⏱️ Countdown to Rare Disease Day: 35 Days
Oft-requested, long awaited… MdDS logo’d t-shirts are available again! And just in time for Rare Disease Day.
Raise Your Voice: #RareDiseaseDay 2016 is Coming
By definition, a rare disease affects a small segment of the population, yet combined the 7,000 known rare diseases affect 30 million people — that’s 1 in 10 of us. Many Americans do not realize how common rare diseases are and that our community has tremendous unmet medical needs. On February 29, join together to raise your […]