Hello, This Is Me MdDS Foundation 2:45 pm Raising Awareness, art 11.12.2018 Hello, This Is Me 1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me. Read More
Picture Perfect a Contributing Writer 2:29 pm Raising Awareness, Faces of MdDS 9.22.2018 Picture Perfect After a day of flying and going up 107 stories to a restaurant in the sky, I felt a panic I had never felt before. It felt like I was walking on a bouncing floor. Read More
Be Ready to Raise MdDS Awareness on Rare Disease Day a Contributing Writer 3:00 pm Raising Awareness 1.28.2018 Be Ready to Raise MdDS Awareness on Rare Disease Day To help you, we set up a store on Zazzle. From tees to mugs, there are many items to raise awareness of MdDS – and you can customize them all!The purpose of the store is to raise awareness and help people who are battling Mal de Débarquement Syndrome, and those who have no idea of their illness. […] Read More
This GivingTuesday at the MdDS Foundation MdDS Foundation 1:39 pm Announcements 10.23.2017 This GivingTuesday at the MdDS Foundation ANNOUNCEMENT: 10.27.2017 — The Gates Foundation is matching donations made to US nonprofits using Facebook on Giving Tuesday. Facebook is also waiving fees on donations that day, so please schedule a reminder for Giving Tuesday, 11/28/20017, on your calendar to donate through our fundraiser page on Facebook.This GivingTuesday, we are focused on our goal to […] Read More
Welcome, friends and supporters. The time is here! MdDS Foundation 8:44 pm News 7.11.2017 Welcome, friends and supporters. The time is here! A Russian river cruise. An anniversary trip to Paris. Lifelong sailor. Spontaneously. While each of our journeys began differently, we are bound together by the need for diagnosis, treatment and support, and the cure for MdDS. Read More
Perfect for JAM. Perfect for You. MdDS Foundation 4:36 pm Raising Awareness 6.5.2017 Perfect for JAM. Perfect for You. Newly available, this bangle bracelet is perfect for raising awareness during June Awareness Month (JAM) or any time.The charm says, “Stop the Rock” and features an awareness ribbon in silver and blue, the colors for neurological diseases and disorders like MdDS. Feel free to change the charm’s blue background to your favorite color, and make […] Read More
The Foundation Educates Doctors MdDS Foundation 12:00 am Uncategorized 3.28.2017 The Foundation Educates Doctors The Foundation uses two simple yet effective tools to advocate for you, on your behalf. Upon your request Board President, Marilyn Josselyn, herself will mail out a letter to your doctor that introduces them to MdDS. This one page letter briefly describes MdDS, possible etiology and current research efforts.Click to view a sample: Letter for ProfessionalsThe […] Read More
⏱️ Countdown to Rare Disease Day: 35 Days MdDS Foundation 12:16 pm Announcements 1.24.2017 ⏱️ Countdown to Rare Disease Day: 35 Days Oft-requested, long awaited… MdDS logo’d t-shirts are available again! And just in time for Rare Disease Day. Read More
