Please leave a comment to congratulate and thank Hayley, for carrying the banner 21.1 kilometers or 13.1 miles, in her run to raise awareness of MdDS.Hayley completed the half-marathon in her MdDS shirt and raised over $1,300 for research. She ran in honor of Jane, the UK representative for the MdDS Foundation. Not only does […]
When we talk about the statistics, that 1-in-10 Americans has a rare disease, of which there are about 7,000, what does that mean? To you? While it’s true that rare diseases and disorders affect 30 million in the US alone, to you it probably meant you spent a lot of money, visiting doctor after doctor, […]
The Foundation would like to acknowledge the following donations made by friends and loved ones. We thank you for your care and support. Doug’s 24-hr Run to Raise Awareness: Terrie DeJong Marie Pierree Aldinger David Polaner Flora Riley Teresa Pratt Carl Osbourne LM McManus Glen Failla Lesa Failla Barbara A. Failla and Louis J. Failla 3rd Annual MdDS […]
December 7–8, Doug, an MdDSer since March of 2013, will run a 24-hour ultramarathon to raise awareness of MdDS.Doug has completed over 30 ultramarathons but he says, “Since developing MdDS it has been a challenge to train like I should. I consider myself blessed to be able to function at work and continue running.I KNOW what a […]
It’s been a very busy and active June Awareness Month (JAM). Over 500 professional brochures have been mailed around the world in efforts to educate the public and professionals about Mal de Débarquement Syndrome. Many people are doing once-a-day informational posts on their Facebook pages, and others are donating to keep the efforts alive. We’d like […]
In case you are not familiar, a friendraiser is an event hosted by a foundation or its board members to cultivate donors by having current supporters bring a friend. The event is typically a closed, private party with good drink, good food, and even entertainment. But we’re not typical, are we? Of course we enjoy, good […]
This year’s Walk Series and Friendraiser was well-attended and contributed significantly to our efforts to fund MdDS education and research. Together, we raised over $7,500!“Thank You!” to our sponsors, walkers, and cyberwalkers for making this event a success. Here are some pictures from Colorado, Texas, Massachusetts and Florida. If you’ve got Rock’n Stroll pictures you’d […]
Cause bracelets have been available for breast cancer and heart disease but there has never been a unifying symbol, color or bracelet that represents the rare and genetic disease community. That’s why the Global Genes Project started the 7,000 Bracelets for Hope™ campaign.They collect unique bracelets made by jewelry designers, artists, crafters, church groups, girl […]
