Run to Raise Awareness in the UK MdDS Foundation 6:00 am Raising Awareness 3.24.2014 Run to Raise Awareness in the UK Please leave a comment to congratulate and thank Hayley, for carrying the banner 21.1 kilometers or 13.1 miles, in her run to raise awareness of MdDS.Hayley completed the half-marathon in her MdDS shirt and raised over $1,300 for research. She ran in honor of Jane, the UK representative for the MdDS Foundation. Not only does […] Read More
It’s Rare Disease Day! Tell us the challenges you face having a #RareDisorder MdDS Foundation 6:00 am Raising Awareness 2.28.2014 It’s Rare Disease Day! Tell us the challenges you face having a #RareDisorder When we talk about the statistics, that 1-in-10 Americans has a rare disease, of which there are about 7,000, what does that mean? To you? While it’s true that rare diseases and disorders affect 30 million in the US alone, to you it probably meant you spent a lot of money, visiting doctor after doctor, […] Read More
Honor Donations MdDS Foundation 4:07 pm Acknowledgment 1.5.2014 Honor Donations The Foundation would like to acknowledge the following donations made by friends and loved ones. We thank you for your care and support. Doug’s 24-hr Run to Raise Awareness: Terrie DeJong Marie Pierree Aldinger David Polaner Flora Riley Teresa Pratt Carl Osbourne LM McManus Glen Failla Lesa Failla Barbara A. Failla and Louis J. Failla 3rd Annual MdDS […] Read More
One Epic Run to Raise Awareness MdDS Foundation 11:20 pm Raising Awareness 11.6.2013 One Epic Run to Raise Awareness December 7–8, Doug, an MdDSer since March of 2013, will run a 24-hour ultramarathon to raise awareness of MdDS.Doug has completed over 30 ultramarathons but he says, “Since developing MdDS it has been a challenge to train like I should. I consider myself blessed to be able to function at work and continue running.I KNOW what a […] Read More
There’s just one week left to JAM. Let’s end it with a BANG! MdDS Foundation 12:01 am Uncategorized 6.23.2013 There’s just one week left to JAM. Let’s end it with a BANG! It’s been a very busy and active June Awareness Month (JAM). Over 500 professional brochures have been mailed around the world in efforts to educate the public and professionals about Mal de Débarquement Syndrome. Many people are doing once-a-day informational posts on their Facebook pages, and others are donating to keep the efforts alive. We’d like […] Read More
Our Friendraiser Store MdDS Foundation 8:00 am Raising Awareness 6.13.2013 Our Friendraiser Store In case you are not familiar, a friendraiser is an event hosted by a foundation or its board members to cultivate donors by having current supporters bring a friend. The event is typically a closed, private party with good drink, good food, and even entertainment. But we’re not typical, are we? Of course we enjoy, good […] Read More
Rock’n Stroll 2012 MdDS Foundation 4:24 pm Raising Awareness 10.1.2012 Rock’n Stroll 2012 The inaugural Walk Series and Friendraiser successfully raised over $7,500 for MdDS education and research, thanks to sponsors, walkers, and cyberwalkers. Participation spanned several states. Enjoy the photos! Read More
Wear That You Care MdDS Foundation 3:03 pm Raising Awareness 7.27.2012 Wear That You Care Cause bracelets have been available for breast cancer and heart disease but there has never been a unifying symbol, color or bracelet that represents the rare and genetic disease community. That’s why the Global Genes Project started the 7,000 Bracelets for Hope™ campaign.They collect unique bracelets made by jewelry designers, artists, crafters, church groups, girl […] Read More
