June 2024 Newsletter
Exciting news you can use! This edition is filled with important information that you definitely want to read.
Tag: june awareness month
“MdDS – the struggle is real” by Dawn
“I hope to help people understand how debilitating MdDS is and how frustrating it is to look fine on the outside but silently suffer.” ~Dawn #thestruggleisreal
“A wobbly tale” by Palm
In spite of the variability, unpredictability and invisibility to others, Palm’s story contributes to the crucially important work of educating each other and the wider public about MdDS.
I’m not Dawn yet!
For some, MdDS is a cloak of darkness that settles over them. But Dawn McGhee is helping people who struggle like herself, to find light in the darkness.
Rocking Candles, Giving Back since 2018
For eight years, Kate has been explaining to others what daily life is like for MdDS sufferers. An MdDS warrior herself, she has been creating custom candles and giving back through donations to support research so we can all “get off that boat.”
Breakdowns & Buddha Bowls, by Andrea Smit
Did you know? MdDS can be triggered by an event that doesn’t involve travel. Here is an unusual case, in a word: jishin-yoi Read & Learn!
Winning against “The Beast!!”
Jo spent six months almost grieving for her old self. But now she’s managing MdDS and even cruising again. Read Jo’s story on the blog today.
Perspectives of an MdDS Patient and Future Physician-Scientist, by Sydney Nelson
Beginning MD/PhD training, Sydney has unique perspectives and a lot of thoughts on MdDS! Among them, a message to other young people with MdDS: Your goals and dreams are still achievable! Read her story on the blog today.