“Lost at Sea” by Desiree Meek
Ten thoughtful images create the series “Lost at Sea” that tells a story of powering through the discouragement and darkness that so often come with having a chronic illness like MdDS.
Tag: june awareness month
Volunteer Spotlight: Your friendly gatekeeper, Brandy
Volunteering anywhere is a great use of time for anyone. If you can finish volunteering somewhere and know that you’ve impacted the life of anyone, personally it makes me feel really good. ~Brandy
Shine a Light on MdDS
Join us and “Shine a Light on MdDS.” Whether using social media, sending out educational brochures, or wearing MdDS apparel while you’re out-and-about, your help is vital to raising awareness of MdDS.
Perfect for JAM. Perfect for You.
Newly available, this bangle bracelet is perfect for raising awareness during June Awareness Month (JAM) or any time. The charm says, “Stop the Rock” and features an awareness ribbon in silver and blue, the colors for neurological diseases and disorders like MdDS. Feel free to change the charm’s blue background to your favorite color, and […]
JAM. Spread it!
Did you know that June is our Awareness Month? Well, now you do and we’d like you to join us this JAM. MdDS Foundation informational brochures are a great way to spread the word and educate others about MdDS. To receive free brochures, send an email with your complete mailing address and quantity needed to […]
The Foundation Educates Doctors
The Foundation uses two simple yet effective tools to advocate for you, on your behalf. Upon your request Board President, Marilyn Josselyn, herself will mail out a letter to your doctor that introduces them to MdDS. This one page letter briefly describes MdDS, possible etiology and current research efforts. Click to view a sample: Letter for […]
Celeste’s Journey: a decade with MdDS
Celeste, a pastor’s wife, shared her history of remissions and relapses with us, and we’d like to share it with you. From 2003 through 2013, this is her case history. The following is something I wrote several years ago concerning my years with MdDS. I am sharing it here because many have asked questions. At the […]
Our rare disorder with the strange French name
June is MdDS Awareness Month, so the Foundation and its volunteers have been working doubly hard to spread awareness of Mal de Débarquement Syndrome. Our rare disorder with the strange French name is now recognized by organizations such as the NIH, NORD and, just recently, the Rare Disease United Foundation. But we need to work […]