Perfect for JAM. Perfect for You.

Newly available, this bangle bracelet is perfect for raising awareness during June Awareness Month (JAM) or any time. The charm says, “Stop the Rock” and features an awareness ribbon in silver and blue, the colors for neurological diseases and disorders like MdDS. Feel free to change the charm’s blue background to your favorite color, and […]

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JAM. Spread it!

Did you know that June is our Awareness Month? Well, now you do and we’d like you to join us this JAM. MdDS Foundation informational brochures are a great way to spread the word and educate others about MdDS. To receive free brochures, send an email with your complete mailing address and quantity needed to […]

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The Foundation Educates Doctors

The Foundation uses two simple yet effective tools to advocate for you, on your behalf. Upon your request Board President, Marilyn Josselyn, herself will mail out a letter to your doctor that introduces them to MdDS. This one page letter briefly describes MdDS, possible etiology and current research efforts. Click to view a sample: Letter for […]

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Celeste’s Journey: a decade with MdDS

Celeste, a pastor’s wife, shared her history of remissions and relapses with us, and we’d like to share it with you. From 2003 through 2013, this is her case history. The following is something I wrote several years ago concerning my years with MdDS. I am sharing it here because many have asked questions. At the […]

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Our rare disorder with the strange French name

June is MdDS Awareness Month, so the Foundation and its volunteers have been working doubly hard to spread awareness of Mal de Débarquement Syndrome. Our rare disorder with the strange French name is now recognized by organizations such as the NIH, NORD and, just recently, the Rare Disease United Foundation. But we need to work […]

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There’s just one week left to JAM. Let’s end it with a BANG!

It’s been a very busy and active June Awareness Month (JAM). Over 500 professional brochures have been mailed around the world in efforts to educate the public and professionals about Mal de Débarquement Syndrome. Many people are doing once-a-day informational posts on their Facebook pages, and others are donating to keep the efforts alive. We’d like […]

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