MdDS Patient Registry: Research Designed with You in Mind MdDS Foundation 10:27 am I Am Empowered, Patient Registry 03/17/2026 MdDS Patient Registry: Research Designed with You in Mind Living with MdDS is hard enough—contributing to research shouldn’t be. The upcoming MdDS Patient Registry is being designed with you in mind! • Simple multiple choice surveys • Point-and-click ease • Start and stop at your convenience! See how your journey can fuel new treatments and connect you with community insights. Read More
Breakthrough Summit Report: Turning Takeaways into Action MdDS Foundation 12:07 pm Advocacy, Our Impact, Patient Registry, Raising Awareness 11/12/2025 Breakthrough Summit Report: Turning Takeaways into Action More than attending an annual meeting, making in-person connections is how we amplify the MdDS community’s voice and create lasting positive change. 👀 Want to know what this means for you? Read the full post now! Read More
Clinical Research Training Scholarship MdDS Foundation 12:00 am Announcements, Faces of MdDS, Research 06/01/2025 Clinical Research Training Scholarship In collaboration with the American Academy of Neurology (AAN), the MdDS Foundation and American Brain Foundation (ABF) are offering a Clinical Research Training Scholarship focused on MdDS. Read More
Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT MdDS Foundation 3:49 pm Our Impact, PROspective 01/15/2025 Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT The MdDS Foundation is proud to have a distinguished group of volunteers dedicated to supporting the MdDS Patient Registry. In the coming weeks, we’ll be highlighting other members and the important work they do. Read More
Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Raising Awareness, Advocacy, Faces of MdDS, Research 11/16/2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
June 2024 Newsletter MdDS Foundation 11:59 am Our Impact, Raising Awareness, Announcements, Faces of MdDS, Research, News 07/08/2024 June 2024 Newsletter Exciting news you can use! This edition is filled with important information that you definitely want to read. Read More
Scholarship Announcement & Commitment to Cures MdDS Foundation 10:20 am Raising Awareness, Our Impact, Announcements, Research 05/30/2023 Scholarship Announcement & Commitment to Cures Our commitment to life-changing research continues with a scholarship announcement. Read More
The biological basis of MdDS is real. Studies have given us an understanding of the neural basis of MdDS, and guided the development of different forms of non-invasive brain stimulation therapies. – Yoon-Hee Cha, MD MdDS Foundation 11:00 am PROspective, Research 01/31/2018 The biological basis of MdDS is real. Studies have given us an understanding of the neural basis of MdDS, and guided the development of different forms of non-invasive brain stimulation therapies. – Yoon-Hee Cha, MD Effective research requires teamwork.Research into the biological basis of MdDS has advanced rapidly in the last 10 years through the collaborative efforts of scientists, engineers, clinicians, funding organizations, and not least of all, people affected by MdDS. It would be difficult to find any other disorder in the same time period that has been investigated […] Read More
