Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT MdDS Foundation 3:49 pm Our Impact, PROspective 1.15.2025 Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT The MdDS Foundation is proud to have a distinguished group of volunteers dedicated to supporting the MdDS Patient Registry. In the coming weeks, we’ll be highlighting other members and the important work they do. Read More
Part 2: The 2024 Breakthrough Summit, Tote & PAOs MdDS Foundation 10:06 am Advocacy, Raising Awareness, Research 11.22.2024 Part 2: The 2024 Breakthrough Summit, Tote & PAOs Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes. Read More
Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Advocacy, Raising Awareness, Faces of MdDS, Research 11.16.2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
June 2024 Newsletter MdDS Foundation 11:59 am Raising Awareness, Our Impact, Announcements, Faces of MdDS, Research, News 7.8.2024 June 2024 Newsletter Exciting news you can use! This edition is filled with important information that you definitely want to read. Read More
Rocking Candles, Giving Back since 2018 MdDS Foundation 12:27 pm Raising Awareness, art, Faces of MdDS 6.19.2024 Rocking Candles, Giving Back since 2018 For eight years, Kate has been explaining to others what daily life is like for MdDS sufferers. An MdDS warrior herself, she has been creating custom candles and giving back through donations to support research so we can all “get off that boat.” Read More
Be seen. Be heard. Read to the bottom. MdDS Foundation 9:28 am Raising Awareness, art, Faces of MdDS 7.5.2023 Be seen. Be heard. Read to the bottom. It’s been a privilege for us to raise awareness through the eyes of MdDS Warriors. Let’s keep working together and find the better life we deserve. Read More
MdDS Maelstrom MdDS Foundation 10:41 am Raising Awareness, art 6.17.2023 MdDS Maelstrom fear of falling, depression and anxiety, deep uncertainty… Karen isn’t alone in having a maelstrom of fears and emotions. Read More
The Abyss MdDS Foundation 10:40 am Raising Awareness, art, Faces of MdDS 6.14.2023 The Abyss We used an online art generator to create this depiction of MdDS. What symptoms do you see? How do you feel? Read More
