Home / For Professionals – Research The MdDS Foundation supports clinical and translational research studies and unites investigators with an interest in studying this disorder. There are promising scientific developments on the horizon. Featured Research Exploring the Impact of MdDS on Cognitive Function in Sailors During Deployment Kissimmee, FL, August 2024 – Lt. Cmdr. Charlotte Hughes presented research findings at the 2024 Military Health System Research Symposium (MHSRS). Lt. Cmdr. Charlotte Hughes, a Navy ENT/otologist, studied the effects of a ship’s motion on cognitive performance, which was the focus of her presentation, “Exploring the Impact of Mal de Debarquement Syndrome on Cognitive Function in Sailors: A Study Aboard the USNS Mercy (T-AH 19)”. A Naval Medical Center San Diego (NMCSD) researcher and the ENT residency associate program director, Hughes collected the data while she was underway aboard USNS Mercy (T-AH 19) during her deployment for Pacific Partnership 2024. https://health.mil/News/Dvids-Articles/2024/09/04/news480054 Other Research OKN / VOR The optokinetic (OKN) reflex and the vestibulo-ocular reflex (VOR) are nervous system functions that work together to stabilize the eyes and visual images during head movements. View Research Topic Neuromodulation Neuromodulation uses magnetic, electrical or chemical stimulation to change the way nerves send information to and from the brain. View Research Topic Vestibular Rehabilitation Vestibular rehabilitation therapy (VRT) uses targeted physical therapy exercises to treat dizziness, balance issues and related symptoms. View Research Topic Basic Science Research focused on understanding the fundamental building blocks and building foundational knowledge. Expanding our understanding serves as the basis for further applied research and innovation. View Research Topic MdDS Patient Registry The MdDS Foundation is developing a global patient registry that aims to aid in finding answers to important questions about the natural history of MdDS. Using the IAMRARE® platform powered by the National Organization for Rare Disorders (NORD®), the MdDS Patient Registry will gather information through validated surveys and custom questionnaires. Deidentified patient data will help researchers explore potential treatments or launch clinical trials. Similarly, aggregated patient data will be analyzed to inform healthcare providers of information to improve standards of care. In addition, patients will have the opportunity to be notified about MdDS clinical trials as well as view their data in comparison to others within the registry. Learn more about the IAMRARE® program and be on the lookout for information about the Mal de Debarquement Syndrome Patient Registry in the near future. Past Survey Results Initial Survey Results 2010 Medication Survey Results 2008 Symptom Survey Results 2007 Water-related Survey Results 2010 Clinical Presentation Survey Results 2007 Geographic Survey Results 2006 – MISSING Diagnosing MdDS Apply for a Grant Research MdDS Foundation 4:44 pm
