It’s Rare Disease Day! Tell us the challenges you face having a #RareDisorder

When we talk about the statistics, that 1-in-10 Americans has a rare disease, of which there are about 7,000, what does that mean? To you? While it’s true that rare diseases and disorders affect 30 million in the US alone, to you it probably meant you spent a lot of money, visiting doctor after doctor, […]

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Mia’s Story and a Sweet Surprise

Several years ago, my family and I went on vacation in the mountains. The drive was about 8 hours long. Five days later, we took a 3-hour flight home. Now, I don’t know whether it was the drive or the flight, but I do know that when I got home, I began feeling different. I began […]

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Trans-Atlantic flight leaves woman with Disembarkment Syndrome

In July 2011, I returned to the U.S. via airplane from a trip abroad. The flight was unremarkable, and I disembarked without an issue, unpacked my things and prepared myself mentally for the return to work. I was a little under the weather on my trip. I had a mild cold and for the first […]

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