It’s Rare Disease Day! Tell us the challenges you face having a #RareDisorder MdDS Foundation 6:00 am Raising Awareness 2.28.2014 It’s Rare Disease Day! Tell us the challenges you face having a #RareDisorder When we talk about the statistics, that 1-in-10 Americans has a rare disease, of which there are about 7,000, what does that mean? To you? While it’s true that rare diseases and disorders affect 30 million in the US alone, to you it probably meant you spent a lot of money, visiting doctor after doctor, […] Read More
Mia’s Story and a Sweet Surprise MdDS Foundation 8:00 am Faces of MdDS 2.22.2014 Mia’s Story and a Sweet Surprise Several years ago, my family and I went on vacation in the mountains. The drive was about 8 hours long. Five days later, we took a 3-hour flight home. Now, I don’t know whether it was the drive or the flight, but I do know that when I got home, I began feeling different. I began […] Read More
Trans-Atlantic flight leaves woman with Disembarkment Syndrome MdDS Foundation 12:00 am Faces of MdDS 2.1.2014 Trans-Atlantic flight leaves woman with Disembarkment Syndrome In July 2011, I returned to the U.S. via airplane from a trip abroad. The flight was unremarkable, and I disembarked without an issue, unpacked my things and prepared myself mentally for the return to work. I was a little under the weather on my trip. I had a mild cold and for the first […] Read More
