The Ship Still Rocks
“My poem expresses both the disorientation and emotional toll of MdDS and the strength, resilience, and grace required to navigate it. I hope that it’s message echoes for others as well.” ~ Elizabeth
Category: Faces of MdDS
Dear Reader,
Join us as we raise awareness, so more people walking around undiagnosed or misdiagnosed may find support in our community. If you win the zebra, take it everywhere you go. Snap photos. And tell everyone your MdDS Zebra Tale!
Disability or Superpower?
It’s silly, but sometimes it’s a bit of comic relief that pulls me from despair. My superpower is a special ability, and why I feel the way I do.
Alone we are Rare. Together we are Strong.
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.
A Journey Through Uncharted Waters: My Life with MdDS
Eleven years ago, Sylvia Hemby’s joyful vacation in Hawaii turned into a challenging experience due to her diagnosis of Mal de Débarquement Syndrome (MdDS). The disorder caused a persistent sense of rocking. Yet, she found solace in creating seashell art, channeling her struggles into beauty and resilience, representing her journey of growth.
Faces of MdDS
7.30.2024
MdDS after a Cruise in 2019. 
It’s 2024.
When I found out I wasn’t alone in having MdDS, knowing many suffered and many had remissions or found ways to feel better, it helped me change my attitude. ~Kim
June 2024 Newsletter
Exciting news you can use! This edition is filled with important information that you definitely want to read.
“MdDS – the struggle is real” by Dawn
“I hope to help people understand how debilitating MdDS is and how frustrating it is to look fine on the outside but silently suffer.” ~Dawn #thestruggleisreal
