Hope Twice Found: My 10-Year Battle Back from the MdDS Monster a Contributing Writer 12:08 pm Faces of MdDS 12.23.2025 Hope Twice Found: My 10-Year Battle Back from the MdDS Monster “You just have to learn to live with it.” We’ve all heard those words, but my journey proves otherwise. After 10 years, a devastating relapse, and a battle back from a stroke, I can finally say: the MdDS monster is gone. Read my full story of hope, the danger of Propofol, and how I found remission twice. 🌊⚓️ Read More
MdDS Insights from a Male Senior Citizen a Contributing Writer 12:43 pm Faces of MdDS 9.16.2025 MdDS Insights from a Male Senior Citizen This story from an older male is unusual. Bill writes about the “rather weird world” we live in and offers a message of hope. Read More
Cayman Charter Boat—>Motion Sickness Forever MdDS Foundation 4:56 pm Faces of MdDS 9.2.2025 Cayman Charter Boat—>Motion Sickness Forever While struggling to find a doctor, Lynn stumbled upon the MdDS website. It gave her hope, relief, and answers. Today, she has a better understanding of her symptoms and her triggers. Telling her story 9 years after the boat charter that left her with “persistent motion sickness,” she wants you to know that you are not alone. And that there is hope! Read More
The Ship Still Rocks MdDS Foundation 5:56 pm Faces of MdDS 6.30.2025 The Ship Still Rocks “My poem expresses both the disorientation and emotional toll of MdDS and the strength, resilience, and grace required to navigate it. I hope that it’s message echoes for others as well.” ~ Elizabeth Read More
Dear Reader, MdDS Foundation 8:04 pm Raising Awareness, Faces of MdDS 6.7.2025 Dear Reader, Join us as we raise awareness, so more people walking around undiagnosed or misdiagnosed may find support in our community. If you win the zebra, take it everywhere you go. Snap photos. And tell everyone your MdDS Zebra Tale! Read More
Clinical Research Training Scholarship MdDS Foundation 12:00 am Announcements, Faces of MdDS, Research 6.1.2025 Clinical Research Training Scholarship In collaboration with the American Academy of Neurology (AAN), the MdDS Foundation and American Brain Foundation (ABF) are offering a Clinical Research Training Scholarship focused on MdDS. Read More
Disability or Superpower? a Contributing Writer 11:33 am Faces of MdDS 11.29.2024 Disability or Superpower? It’s silly, but sometimes it’s a bit of comic relief that pulls me from despair. My superpower is a special ability, and why I feel the way I do. Read More
Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Raising Awareness, Advocacy, Faces of MdDS, Research 11.16.2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
